Ooops, update is a little overdue!
So ... what's been happening since Children in Need Day, when the kids went into school in their pj's?
Well, that night, the kids watched the start of the Children in Need programme, and Dylan has now totally fallen in love with Pudsey Bear! I may have to see if we can buy him one for Christmas, because he keeps pointing out pictures of him! And I'm so glad that we watched the programme, as we saw the faaaabulous
Children in Need single! We Sky+ed the programme and Dylan watched the song over and over again!
On Saturday, Adrian and the kids went to the in-laws' for lunch, and I stayed at home with my Lemsips again. Although, the dose I took on Saturday afternoon was my last! Woo hoo! No more Lemsips in over a week! Phew!
That evening, I wrapped some more Christmas presents, once Dylan had proceeded to swipe half my savoury rice I had for my late lunch! He said "I yuv rice Mummy, yets share it togevva!" Hard to resist that sweet voice!
Sunday was quiet, just catching up on things, and doing the kids homework. Seren had some homework on division, and oh, what a drama queen!!! She could totally do the homework, but every time she made a silly mistake, wrote a number the wrong way round, or came across a bit she didn't think she understood, she dissolved into tears and shrieking. I hope she doesn't do that in school! She got it done in the end though.
On Monday, I dropped the kids off at school, and then, when I saw so many CF families on Facebook having their swine flu jabs, I decided to ring our doctors surgery to ask if they had their stocks of swine flu jabs in yet. When I rang, it turned out that they'd actually rung me a couple of days before to notify us that the jabs were in, but they'd left a message on my landline phone, which I hardly ever check. So I booked them in for this Friday!
When I picked Dylan up after school that day, his teacher came over to speak to me, and said that Dylan had had a very 'silly' day. Apparently he'd been quite agitated and restless, and on one occasion, they'd found him in the toilets screaming and shouting and refused to calm down. But when I picked him up, he did apologise to his teacher, and he said he'd be a good boy the next day.
We got SOAKED walking home from school, and Dylan, already very agitated, got incredibly stressed about how hard the rain was coming down and how wet he was getting and how many puddles there were, and it took a lot to keep him walking without panicking too much. When we got in, we all got changed out of our soaking wet clothes, and I had a talk to Dylan.
Well, I tried. He was still very agitated, and just would NOT stop talking. I never thought I'd say this about Dylan, but he was being a TOTAL MOTORMOUTH! I timed him, and he talked absolutely non-stop from 3.20 pm to 4.10 pm. He barely paused for breath. A lot of the time, he was repeating the same sentences over and over, but other times it was like verbal diarrhoea, just talking about anything and everything. When it got too much, I did ask him to calm down and shush a few times (just because he was freaking me out!) and he just couldn't do it.
He eventually stopped when he had a drink at 4.10, but he was agitated all night, even after we'd dropped Seren off at Rainbows and went to Argos to pick up the Ready Bed (combination sleeping bag and air bed) for her to use for her first Brownie sleepover at the weekend.
Once we'd done that, he and Adrian dropped me off at Asda to do my first weekly shop in two weeks! Out of the house at last!!! Didn't half tire me out, it's taken me a while to get my energy back!
On Tuesday, the kids had school, and I had housework, and when I picked them up, I was very pleased to hear that Dylan was much more well behaved!
When we got home, we took advantage of the 'free' night, with no clubs to go to, and we opened some Post Pals presents ...

Dylan and some very yummy-looking choccie cars

Better shot of all the choccie cars

Dylan and his Spooky Sticker Book

Some cool spooky odds and ends from Karen (Sami)

And these!

And Dylan loved these Batman face paints from Kim G!

Seren was CHUFFED with her Jonas Brothers book!

And her wish box

And her 'Puffa Pouch' from Sarah!
Wednesday was more of the same, housework and school, and ...
Drum roll ...
We got the results of the reconsideration of Dylan's DLA application back.
They
re-instated his higher rate care, and kept the lower rate mobility!
WOOOOO HOOOOO!!!!!!
Obviously, they didn't really read the application
properly the first time, and just tried to fob us off with less than what Dylan was entitled to, hoping that we wouldn't bother making a fuss about it. But they didn't count on me! I wouldn't let that happen to my little boy!
So this time, they took much longer to evaluate his claim, and they must have contacted the people we put down as supporters of our claim, and his doctors, possibly the hospice, and made a
proper decision. And once they'd done that, they couldn't deny that he deserves the higher rate for his care.
So they put his DLA money back up, and gave us back pay for the two months of money he'd missed, and I rang Tax Credits the same day, so that they could change our details again. I'm hoping we might get some back pay from them too, but I don't know yet.
I can't tell you how much of a
relief it is to get it all sorted. And that extra money means so much to our family! It's money to pay the water bills which have been waiting, money to put some petrol in the car, and money to buy some Christmas presents. It has just ... taken the pressure off a bit. Big happy sigh of relief!
Then once I'd picked Dylan up, we watched Seren do her last Cheerleading Club class, and it was so cute to see them all doing their cheerleading routine. They had really got the hang of it over the weeks. And as I said in my previous post, there wasn't any
Water Wings Wednesday, because they cancelled it due to insufficient staff again.
So we dashed to Tesco for a few things, and then I spent the evening packing things and getting ready for a really busy day the following day.
Thursday was one busy day! I dropped the kids off at school, grabbed some breakfast, paid some bills, and then walked into town to get some Christmas shopping done. And I discovered that I'm a big ole wimp when it comes to carrying shopping bags! Four large bags and I'd had enough! I did get quite a lot in those bags though, and I did have to walk all the way home with them!

This is one of the things I picked up, a Christmas hat!
When I got back home, I grabbed some lunch, and then had to leave again to pick Dylan up early from school. He had an appointment for 3.45 pm at the hospital audiology department to check his hearing. The only time I could get a taxi booked for was 2.45 pm, so I ended up having to pick him up at 2.30 pm, and we were at the hospital by just after 3 pm, with a long wait ahead.
So we passed the time getting Dylan a drink and snack, and reading his reading book and library book from out of his school bag.
Meanwhile, my friend Suzie was picking Seren up for me! Bless her! When she heard the day before that I was struggling to find someone to pick Seren up from school and have her for a couple of hours until Adrian could finish work and take her to dance class, she offered to help us out! What a star!
So that morning, when I'd dropped the kids off, I'd given Suzie a bag with Seren's dance uniform, dance shoes, socks, inhaler, spacer and Creon tablets, so that she could pick Seren up for me. She was going to take her home to her house, give her a snack, make sure she got changed into her dance uniform, and then Adrian would pick her up after work.
So when it got to about 3.30 pm, we wandered round to the Audiology department and Dylan played nicely with some toys while we waited for him to be called in. I wasn't sure how well he'd cope with the tests, because it was so different to what he normally goes to the hospital for, in a different part of the hospital, and with unfamiliar doctors.
But he did GREAT! We went through to the testing room and he had to sit down at a little table and the doctor got out a little wooden trolley full of soldiers. He took them all off the trolley, and explained that if Dylan heard a sound, he had to put one soldier back on the trolley. He showed him what he meant, and then he started the test.
And Dylan did it! Every time! Even sounds that were so quiet, I could barely hear them!
Once he'd completed that task and all the soldiers were back on the trolley, the doctor got out a boat full of little wooden people, and Dylan had to put on a pair of earphones (I loved the way he got him to do that, just leaving them casually on the table, rather than
asking or
telling Dylan to put them on, and so of course, Dylan put them straight on!) and every time he heard a sound, he had to put a person back in the boat.
He did great with that task as well, and every time he heard a sound, he said out loud "I hear dat sound!" and put a person in the boat!
He then let the doctor put a little probe in his ear while he sat very still, and after that, the doctor said that he had passed the hearing test with flying colours!
Woo hoo!!!
When we got out of the Audiology appointment, it was only about 4.15 pm, and so we had almost two hours to wait before Adrian would be coming to pick us up. So I bought Dylan some tea (he chose chips and a cheese roll) and he ate most of that, and then we went to the gift shop and he picked out a Teletubbies magazine. And that magazine passed all of the rest of the time! We coloured in the pictures, played with some removable stickers, played with the free gift - snap cards (both as a game of snap, and just a matching game), and played catch with the other free gift - an inflatable piece of Tubby Toast!
When we got home, I got ready for Slimming World, and Adrian went to pick Seren up from her dance class. And even though I hadn't been to SW for a couple of weeks, I was pleased to find that I hadn't put on any weight while I was unwell with that virus, in fact, I lost 1/2 lb!
Once Dylan was in bed that night, we finally got around to trying out Seren's Ready Bed, ready for her sleepover at the weekend ...

Comfy cozy!
Friday was another busy day, as I dropped the kids off at school, grabbed some breakfast, and then walked into town to meet the train from Norwich. Guess who got off ...

Helen T!
She was in the area for the weekend, and decided to pay me a visit! So we wandered into town and browsed the shops, then grabbed a quick drink in McDonalds before getting a taxi to the local Harvester restaurant, where we had lunch.

Me at the Harvester
We had a lovely lunch together, and talked pretty much non-stop for over three hours, but we ended up calling a taxi home a little earlier than I'd anticipated when my wheat intolerance decided to flare up at entirely the wrong moment. And I'd been so careful to order wheat-free foods!
When I got back to the house, I realised that it was quite a bad flare up, and so I ended up having to call on Suzie again to get me out of a fix, as I couldn't pick the kids up myself, Adrian couldn't get out of work, and my friend Kirsty was working, so I didn't have any choice. I felt awful about asking her again, as she'd been so kind to help out the day before, and it inconvenienced her to pick the kids up, but she did it anyway. Bless her.
By the time they got home at around 3.50 pm, my stomach had settled a bit, and I felt brave enough to take the kids in the taxi to the doctors surgery for their flu jabs. And luckily, my stomach behaved from then on!
We had to wait for a while for the jabs, and the kids were generally well behaved. Dylan got a bit fed up of waiting at the end, but luckily the nurse called us through soon after.
Dylan went first, and he was as cool as a cucumber! He took off his coat, took off his jumper, sat on the bed, and told the nurse to go ahead and do it! She was a little unsure, but she took him at his word, pinched some flesh on his upper right arm, showed him the needle, and asked him whether he wanted to watch or to look away. He chose to watch, and he did. And he didn't even flinch! He sat perfectly still and watched the whole thing!
Go Dylan!Seren wasn't nearly so happy about having her jab. She was terrified of a) the injection, and b) having a bad reaction to the Swine Flu vaccine, and so I almost had to drag her to the bed and had to take her jumper and t-shirt off for her. She did sit on my lap, and although she complained, she didn't fight me when I held her arms still, and she let the nurse jab her in the arm. And then she got her praise too!
The nurse booked us back in for the 18th December to get the second doses of their jabs, so at least it'll all be out of the way for Christmas.
We had to sit in the waiting room for ten minutes afterwards, and then we met Adrian outside the surgery. The kids wanted McDonalds as a reward, so we dashed to Tesco first to pick up the pair of leather boots Seren had chosen as her jab bribe. She'd seen them on Wednesday when we were in there, and originally I'd said that she couldn't have them, but I ended up using them as a bribe to get her to have her jab, so we got them on Friday night and she was chuffed.
And then we went to McDonalds and got a drive thru and the kids ate their tea in the car on the cliff, looking out to sea and watching the night fishermen on the beach.
And when we got home, Dylan was able to have his jab reward ...

Transformers slippers! He chose them on Wednesday at Tesco's!
After reading up on how other little CFers were faring with their Swine Flu jabs, I was expecting very sore arms and high temperatures at the least, but Seren and Dylan amazed me by being totally fine! Their arms hurt if they prodded them, just like after their normal flu jabs, but that was it! No dead arms, or really sore arms, or temperatures or anything! Phew!
More updates to come on our fun weekend!